Jeni Stepanek started the Mattie J.T. Stepanek Foundation after the passing of her son, Mattie, who, like her, he had dysautonomic mitochondrial myopathy. During his short but rich lifetime, Mattie became a bestselling author for his peace poetry. Having the opportunity to watch Jeni nurture her beautiful son, Mattie, to help him achieve his dreams and to keep their focus on playing after every storm has been so inspirational to all of us at MY HERO.